Summertime, and the livin’ is easy

The Courteau family kicked off the Summer of 2019 with a trip to California for the Cure SMA conference. It happened to be at Disneyland which was a treat for all of us!  Emma had a blast wheeling around with other kiddos just like her, splashing in the pool with Dad and going on rides.

They returned and bounced into a whirlwind week.  Over Memorial Day weekend they had made an offer on a new home in Covington Washington.  While this house is a little bit further away from Gramma and Poppa, and away from their favorite neighbors in North Bend, it does focus on main story living.  EVERYTHING they need is downstairs, and upstairs has a bonus room and guest room (reservations being accepted now).

Emma stayed with Gramma and Poppa for a few days as her parents got the new house ready.

Emma is very happy, and her mother is too.  No more carrying her up and down the stairs all day!

Emma has continued with her busy schedule of physical therapy, hippotherapy with Lola, water therapy and occupational therapy.  The weeks are flying by.

She had dose #10 of Spinraza at the end of July and is continuing to amaze us with her strength gains.  Her favorite thing to do is to work on standing.  She is one determined girl.

Erin spoke last week for the first time as a Biogen Patient Ambassador and has a few more events lined up for the rest of the year.  And she is the chair for the annual Pacific Northwest Walk and Roll.  Moving away from the grief of their own diagnosis and helping other families has been very healing for her.

If you like to contribute to the EmmaStrong Walk and Roll team goal – you can donate here:  Walk and Roll

Stay tuned…the summer isn’t over yet!