Avocados, swimsuit and Mamamama….

Just a quick update on how the battle goes.

Emma’s last pediatric checkup had some good news and some so-so news: The good news is that she’s growing like a weed. Apparently she’s stretched out 4 more inches since her last checkup. We suspect that it may have been a measurement error from the last checkup… but we’ll take it.

The so-so news is that she hasn’t put on any weight at all since the last checkup. She’s now 50th percentile for her age so there’s no cause for alarm, but Team Emma has gone to work and come up with some suggested solutions.

We saw in a couple of SMA news articles that avocados are particularly good to help stimulate muscle tone, are chock-full of healthy fats and have lots of calories. So Erin thought it would be a good idea to mash one up and feed it to Emma.

Not such a great idea! Maybe it was the texture.

Anyway, we’ve been experimenting with a higher percentage of formula powder in her bottles, adding yogurt (which she loves), both by spoon and to her bottles as well as moving her up to more fibrous food.

Let us know in the comments if you have any suggestions.

Meanwhile, Emma continues to expand her vocabulary, moving beyond the initial “Cow” and “Turtle” to something more meaningful… and useful.

Emma and Erin continue their aqua therapy sessions. They both have new swim outfits. Here’s Emma showing hers off.

That’s right! More pink flamingos

Emma’s next (and final) Spinraza loading dose is scheduled for December 28.

In the meantime, we’re keeping our spirits up, hoping for the best and enjoying all the beautiful smiles.